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Pudlak

Down From His Glory
 
Uploaded: August 11, 2008 at 3:06 am
Author: jsipeaz
 
Length: 04:28
Rating: N/A
Views: 24
Tags: Benefit  Concert  HPS  

Angels In Voice 9th Annual Benefit Concert for Hermansky-Pudlak Syndrome May 16th 2008
 
HPS 2008 - Friday Night Bingo
 
Uploaded: July 4, 2008 at 6:50 am
Author: tommytillman
 
Length: 05:50
Rating: 5.00
Views: 26
Tags: 11  BINGO  Fibrosis  GoodSearch  Hermansky  HPS  Network  Pinnacle  Pudlak  Pulmonary  Studio  Syndrome  

On Friday nights, after we adjourn from the 1st meeting of the Conference, we head off to play BINGO!!With lots of great prizes!!!And everyone is...
 
HPS 2008 - "J" sings "The Prayer" for HPS
 
Uploaded: July 1, 2008 at 2:26 am
Author: tommytillman
 
Length: 06:42
Rating: 5.00
Views: 18
Tags: "J"  11  Fibrosis  GoodSearch  Hermansky  HPS  Network  Pinnacle  Prayer  Pudlak  Pulmonary  Studio  Syndrome  The  

"J" is a brother/sister singing group from Long Island, New York. They have raised over $100,000 for the HPS Network and have given immensely...
 
HPS 2008 - Raleigh to New York (via Detroit) - part 1
 
Uploaded: June 13, 2008 at 12:54 am
Author: tommytillman
 
Length: 06:31
Rating: 5.00
Views: 156
Tags: Airport  Detroit  GoodSearch  Hermansky  HPS  Laguardia  Metro  Network  New  NWA  Pinnacle  Pudlak  Pulmonary  RDU  Syndrome  York  

Here is Part 1 of Holly and her Dad's flight from Raleigh to New York via Detroit.In part 1, we leave the cool, clear Raleigh...
 
HPS 2008 - Raleigh to New York (via Detroit) - part 2
 
Uploaded: June 12, 2008 at 5:00 am
Author: tommytillman
 
Length: 06:47
Rating: 5.00
Views: 109
Tags: Airport  Detroit  GoodSearch  Hermansky  HPS  Laguardia  Metro  Network  New  NWA  Pinnacle  Pudlak  Pulmonary  RDU  Syndrome  York  

Here is Part 2 of Holly and her Dad's flight from Raleigh to New York via Detroit.In part 2, we leave the snow wastes of...
 
HPS 2008 - Sunday Morning Sessions - Lunch - Afternoon
 
Uploaded: June 3, 2008 at 5:12 am
Author: tommytillman
 
Length: 09:06
Rating: 5.00
Views: 42
Tags: Circle  Friends  GoodSearch  Hermansky  How  HPS  Live  Network  of  Pudlak  Pulmonary  Syndrome  You  

Yawn........ wake up! Time to go to the Sunday Morning HPS Sessions, eat Lunch, then head back for the afternoon Sessions.Things are really BUSY...
 
HPS 2008 - What is Your Favorite Thing About the Conference?
 
Uploaded: May 30, 2008 at 10:52 pm
Author: tommytillman
 
Length: 03:36
Rating: 5.00
Views: 61
Tags: GoodSearch  Hermansky  HPS  Network  Pudlak  Pulmonary  Syndrome  

Here we asked some of the HPS attenders "What was their favorite thing about the conference?"
 
HPS 2008 - The HPS Scholarship Award - Part 10
 
Uploaded: May 22, 2008 at 4:13 am
Author: tommytillman
 
Length: 03:51
Rating: N/A
Views: 27
Tags: GoodSearch  Hermansky  HPS  Network  Pudlak  Pulmonary  Scholarship  Syndrome  

The HPS Network honors the Kirshners for their generosity in providing the HPS - Kirshner Scholarship Award. This new program was set up by the...
 
HPS 2008 - Taking Chances - J and Dr. White - Part 9
 
Uploaded: May 20, 2008 at 11:33 pm
Author: tommytillman
 
Length: 03:07
Rating: N/A
Views: 29
Tags: Albinism  Albino  Blindness  Disease  Dr.  Firbosis  GoodSearch  Hermansky  HPS  Lung  Network  Pudlak  Pulmonary  Syndrome  White  

The HPS Network Honors the Singing Group J and Dr. White.J has raised much money for the HPS Network and Dr. White is one of...
 
HPS 2008 - The Twins sing "When You Believe" - Part 8
 
Uploaded: May 20, 2008 at 5:29 am
Author: tommytillman
 
Length: 04:19
Rating: 5.00
Views: 70
Tags: Believe  Carey  GoodSearch  Hermansky  Houston  HPS  Mariah  Network  Pudlak  Pulmonary  Syndrome  When  Whitney  You  

The Twins, Candice and Crystal, sing "When You Believe" during the Dinner.(I apologize for the glitch in at about 50 seconds.... I hit the ON/OFF...
 






 
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