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yindyamarra (October 7, 2008 at 11:33 am)
how did you go with the contacts i gave you?????
ABPASupport (October 5, 2008 at 4:09 pm)
I need to find a support group...how do I join your group????
ABPASupport (October 4, 2008 at 4:37 am)
Hi, I have this...you are not alone....although you may feel like it sometimes....today has been very hard for me ...hugs
yindyamarra (September 24, 2008 at 2:05 am)
im sorry you got this thing as well and i really hope you are feelinjg ok ,ABPA is not nice hey,im sick of having steroids shoved down my throat and puffers all the time as well ,i am actually going to see a chinese herbalist in a few weeks time,i want to try something different,i think i have the right to have a go at something else,thaks for the comment and keep safe,and if youlisten hard as i am speaking you can hear the plug in my lung while i filmed this
humm1nbear (September 23, 2008 at 8:20 pm)
hiya, I also have this god awful condition and cant get off of oral steroids or anti-fungals. My ige climbs up over 8000 on a bad day wish I could find out what doesn't set me off then I would live my life right there.I hope this post finds you in good health wishing you all the best for the future
yindyamarra (September 21, 2008 at 12:38 pm)
thanks Liz,yep got lots of support,in the vid you can hear me weezing thats aplug in there,befroe the used to opperate now they decide to boost you upwith steriods before the knife treatment ,thanks for your kind words
Ultralizzard123 (September 20, 2008 at 1:35 am)
I, too, have never heard of this disease. My father had a fungus removed from his lung - and that's my only experience with a lung disease. God Bless You and I'll keep you in my prayers. I hope you have a wonderful support network with family and friends. Liz from GA
yindyamarra (September 3, 2008 at 8:05 am)
thanks for the comment,i deal the best i can,some days i have no energy at all and feel like i have the flue with joints aching ,
StopBSing (September 3, 2008 at 7:44 am)
Hello friend,i never heard of the disease until now,i hope you are dealing with it the best you can.Much love your way.
katedorrough (August 1, 2008 at 1:38 pm)
Aye dere my brother. Sorry to hear you are crook. I'll be prayin' for ya. Look afta yaself dere and keep coming with the awesome vids. Much love, katie xo |
